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"The Ethics of Research Involving Vulnerable Populations" is the focus of a reading group being led this fall by psychologist Celia B. Fisher, who is bioethicist-in-residence at Yale for the 2002-2003 academic year.
Fisher is director of the Fordham University Center for Ethics Education and professor of applied developmental psychology there. She currently chairs the American Psychological Association's Ethics Code Revisions Task Force and is former chair of the New York State Board for Licensure in Psychology and the Society for Research in Child Development's Committee for the Ethical Conduct in Child Development Research.
"As a young developmental psychologist, I believed adherence to federal regulations and principles of research design could ensure the good and responsible conduct of science," says Fisher. "Motherhood changed that belief. Seeing the faces of my son and daugher in the children I studied, I began to wonder: Did parental permission and a nod of assent adequately ensure youngsters were voluntarily participating in my research? Was children's involvement in studies on psychological development eliciting anxious feelings or unspoken problems and concerns that called for adult guidance rather than professorial distance?"
Fisher has written widely on issues related to research ethics -- including commissioned papers for the President's National Bioethics Advisory Committee and the National Institute of Mental Health -- and has developed research ethics instruction manuals for students and scientists alike.
In her own research, Fisher is studying how teenagers and parents from different racial/ethnic backgrounds prepare for and react to racial discrimination, the ability of children and adults with cognitive vulnerabilities to consent to research and treatment, the validity of child abuse assessment techniques, and community and participant perspectives on research on drug addictions and suicide.
The non-credit reading group led by Fisher is open to the public; for information and a reading list, contact Carol Pollard, ISPS and Bioethics project coordinator at (203) 432-6188 or carol.pollard@yale.edu.
Fisher will also be teaching a lecture course this fall titled "Bioethics: Issues in Mental and Physical Health Care and Biomedical and Behavior Science Research" and a seminar this spring titled "Topics in Bioethics." Undergraduates can enroll in the latter seminar with Fisher's permission.
The Bioethics Project -- which encompasses work being done in the medical, scientific, genetic and environmental fields -- will sponsor many programs this year, including symposia, seminars, lectures and working research groups.
A list of these activities, which includes comprehensive information about bioethics researchers and courses at Yale, can be found in the newest edition of "Bioethics at Yale." The booklet can be obtained by contacting Carol Pollard at (203) 432-6188 or carol.pollard@yale.edu
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